Another update on my granddaughter:
While she still has a long way to go and her progress has been slow, it has been steady . . . which is great as I've always heard that slow and steady wins the race.
A few day's go, she had a test done to be sure that there wasn't any leakage where her esophagus was stitched to her new stomach. This test required her to drink a barium mixture. The techs warned that this stuff tastes really nasty and to expect difficulty in getting her to drink it.
However, she gobbled it which had one of the techs grabbing for a camera as it was such a rarity to see a young child willingly drink that so easily.
The reason I am sharing this is because this is the same little girl who wouldn't even let the tiniest bit of her birthday cake and ice cream anywhere near her mouth. So, it was amazing to see her wanting to eat again. And, since the test went well; she is now receiving small oral feedings on a regular basis.
Riley continues to impress me with everything they do to try to help patients and their families enjoy their stay a bit more. My daughter and her husband were recently invited to play a TV game show on my granddaughter's behalf and won two prizes for her. When my grandson arrived for a visit; he was given a bag containing a puzzle, coloring book, crayons, play doh, a toy car, etc. That really helped him get over not being able to actually see his little sister.